Adapting to Life with Neurological Conditions eps 102

In this episode of my candid podcast, I share my lived experiences as a patient with a neurological condition. Crucially, I grapple with the hard realities of being discharged from neurology, an event that leaves me feeling stranded. In spite of this heavy blow, I strive to adopt a positive mindset: I'm freeing up a space for another patient who might need it.

I reveal the raw details of dealing with 60 to 250 or more seizures each day and the weight this condition places on my quality of life. Having to navigate the maze of medical referrals and join notoriously long waiting lists, I'm thrust back to figuring out what comes next and fight off feelings of isolation reminiscent of my initial diagnosis.

The complex dynamics of my neurological condition, FND functional seizures, require attention but the current health system seems unequipped to tackle it effectively. However, the setbacks don’t deter me from pursuing effective care. I also provide insights on how this rollercoaster affects my mental health, underscoring the interconnectedness of physical and emotional wellbeing.

Despite my uncertainties, I find the strength to navigate the system and understand what my 'next' looks like. Dealing with this condition is no easy task, but it's about picking up the gauntlet and forging ahead. I share my story to shed light on the struggles of living with chronic condition, but also anchor my narrative on resilience and the relentless quest for better days.

Join me in this honest and raw exploration of life with a neurological condition. We may have difficult moments, but remember, if you manage to get out of bed in the morning, you're already winning the day. Everything else is a bonus.