The It’s Me It’s Me It’s FND Podcast

Struggling with Misinterpretations and Miscommunications 103

Welcome back to another episode of "It's Me, It's Me, It's F&D." After a brief hiatus, our host delves deep into his frustration and struggles concerning the misinterpretations and inaccuracies in his discharge letter. Unhappy with the contradiction between his reported health conditions and the consultant's inaccurate summary of his situation, he and his wife are taking steps to address this dire matter. Delving into the depths of medical jargon and misconceptions, our host grapples with the inappropriate use of outdated terminology and expresses his perturbation over the misrepresentation of his seizure frequency. His concern heightens when he reads mention of his newborn child, wrongly used to explain his chronic sleep deprivation, a problem that prevailed long before. Furthermore, he voices his irritation over implications that he failed to maintain the benefits of his psychotherapy sessions, despite the lack of ongoing support and assistance. Our host feels that the discharge letter is ill-considerately written, causing him utter anguish and frustration. The episode offers a closer look at medical negligence, bureaucracy, and the upheavals it can cause in a patient's life. Calling out the system, he resonates with countless others facing the same challenges while fighting their health battles. Simultaneously, he shares his hardships of dealing with Medquip, a company that has caused him more stress than comfort. Consequently, his seizures worsen, adding another layer to his ongoing health issues. Bridled with the feeling of failure and rejection, he anchors himself with a positive outlook on life and a reminder for his listeners to rest if needed. Tune in to this episode to delve into the complex life of F&D told through our host's heartfelt dialogue.

Adapting to Life with Neurological Conditions eps 102

In this episode of my candid podcast, I share my lived experiences as a patient with a neurological condition. Crucially, I grapple with the hard realities of being discharged from neurology, an event that leaves me feeling stranded. In spite of this heavy blow, I strive to adopt a positive mindset: I'm freeing up a space for another patient who might need it.I reveal the raw details of dealing with 60 to 250 or more seizures each day and the weight this condition places on my quality of life. Having to navigate the maze of medical referrals and join notoriously long waiting lists, I'm thrust back to figuring out what comes next and fight off feelings of isolation reminiscent of my initial diagnosis. The complex dynamics of my neurological condition, FND functional seizures, require attention but the current health system seems unequipped to tackle it effectively. However, the setbacks don’t deter me from pursuing effective care. I also provide insights on how this rollercoaster affects my mental health, underscoring the interconnectedness of physical and emotional wellbeing. Despite my uncertainties, I find the strength to navigate the system and understand what my 'next' looks like. Dealing with this condition is no easy task, but it's about picking up the gauntlet and forging ahead. I share my story to shed light on the struggles of living with chronic condition, but also anchor my narrative on resilience and the relentless quest for better days.Join me in this honest and raw exploration of life with a neurological condition. We may have difficult moments, but remember, if you manage to get out of bed in the morning, you're already winning the day. Everything else is a bonus.

FND New year same me 101

Whats your new year stuff to do? 

ITS ME ITS ME FND EPS 100!!!!

eps so 100 and it with the news I have a son!!!! also started this 4 years ago and I kept it going so proud of myself 
 

FND AND FIREWORKS DONT MIX eps 99

They dont mix do they 

FND And the head inury! eps 98

I got a bit of a bang on the head sadly!! 

Back in the swing of things kind of eps 97

It been a while sorry it's been 6 weeks of holidays and there has been lots of stuff going on while I been gone with stuff but I hope this puts me back in the routine again and swing of stuff 

Having a plan for 6 weeks Hoildays with FND eps 96

Making a plan I think has helped me a lot this six weeks and it getting easier to do so! 

Big Changes coming in my life eps95

I have some huge things happing very soon 

THERE A NEW NAME FOR NEAD. FUNCTIONAL SEIZURES EPS 94

FUNCTIONAL SEIZURES is the new name for NEAD it will take a long time for this to get into the minds of medical people but it a start